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从伦理和实际情况考虑,对临终监护从治疗转为缓解
Transitioning Care From Cure to Palliation at the
End of Life: Ethical and Practical Considerations
Andrew Shaw, MB, FRCA
Introduction
End-of-life care means different things to different
people. For the patient, who has the greatest stake
(but often the least decision-making capacity) in obtaining
high-quality care, it is about ensuring that the transition
from life to death occurs peacefully and without discomfort
or loss of dignity. For the family, it is a time of
reflection and sadness in which members experience a
sense of loss. It may also be a time of regret and guilt
over previous missed opportunities. For intensive-care
providers, end-of-life situations occur regularly and
are considered part of the job. There is thus an intrinsic
difference between the experience of the staff and the
family -- an experience that may occur very few times
in the life of the family member, but very often in
the life of the staff member. Because of this difference,
it is very important for end-of-life caregivers to be
engaged enough to convey the real sense of care and
loss that most staff members report after a patient's
death, but not so engaged that the caregiver becomes
unable to deal with the additional personal burden that
may accompany the loss of the patient. The following
report reviews the recommendations of the Ethics Committee
of the Society of Critical Care Medicine (SCCM) for
end-of-life care in the intensive care unit (ICU), which
were published in the journal Critical Care Medicine
in December 2001,[1] and presented at the 32nd Critical
Care Congress in San Antonio, Texas in February, 2003,
by Daniel Thompson, MD,[2] of Albany Medical College,
Albany, New York, and April Howard, RN, CCRN, CCRC,[3]
of Wake Forest University School of Medicine, Winston-Salem,
North Carolina.
Preparation
of Those With a Stake in the Process
Ensuring
the Patient's Comfort
Principles
of Titration
Removal
of Life-Sustaining Treatments
Conclusions
High-quality care at the end of life is just as important
as accurate diagnosis and effective treatment. It is
not difficult to do well, but it may not be intuitive
either. Junior staff should be taught the principles
of good end-of-life care by example; and this should
not be delegated because of something else that seems
more important. I have summarized the SCCM Ethics Committee
guidelines for end-of-life care and added some personal
perspective from experience in a cancer hospital. Readers
are encouraged to review the guidelines in their entirety
for more detailed information.[1]
References
1. Truog RD, Cist AF, Brackett SE, et al. Recommendations
for end-of-life care in the intensive care unit: The
Ethics Committee of the Society of Critical Care Medicine.
Crit Care Med. 2001;29:2332-2348.
2. Thompson D. Ethics panel: What about end-of-life
care? Transitioning from curing to palliation care.
Program and abstracts of the 32nd Critical Care Congress;
January 28-February 2, 2003; San Antonio, Texas.
3. Howard A. Ethics panel: What about end-of-life care?
Transitioning from curing to palliation care. Program
and abstracts of the 32nd Critical Care Congress; January
28-February 2, 2003; San Antonio, Texas.
4. Singer PA, Martin DK, Kelner M. Quality end-of-life
care: patients' perspectives. JAMA. 1999;281:163-168.
5. Hickey M. What are the needs of families of critically
ill patients? A review of the literature since 1976.
Heart Lung. 1990;19:401-415.
6. Asch DA. The role of critical care nurses in euthanasia
and assisted suicide. N Engl J Med. 1996;334:1374-1379.
7. Danis M, Federman D, Fins JJ, et al. Incorporating
palliative care into critical care education: principles,
challenges, and opportunities. Crit Care Med. 1999;27:2005-2013.
8. Brody H, Campbell ML, Faber-Langendoen K, Ogle KS.
Withdrawing intensive life-sustaining treatment -- recommendations
for compassionate clinical management. N Engl J Med.
1997;336:652-657.
9. A controlled trial to improve care for seriously
ill hospitalized patients. The study to understand prognoses
and preferences for outcomes and risks of treatments
(SUPPORT). The SUPPORT Principal Investigators. JAMA.
1995;274:1591-1598.
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